Category: In The News

The McNesby Act: Bravo!…But there’s more work to do

At its meeting on June 13th, the House Health and Human Development Committee passed an amended version of the McNesby Act (HS 1 for HB 104). Teesie Bonk and Joe McNesby (pictured below) were among those who made public comments in favor of the bill at the hearing. The vote was 10 – 0 to …

Continue reading

Permanent link to this article: http://www.familiesspeakingup.com/2018/06/18/the-mcnesby-act-bravo-but-theres-more-work-to-do/

Delaware is failing adults with disabilities — like my daughter

Funding for long-term care has remained stagnant for years, forcing those who care for adults with special needs to cut back, says advocate Verna Hensley.

Permanent link to this article: http://www.familiesspeakingup.com/2018/04/22/delaware-is-failing-adults-with-disabilities-like-my-daughter/

Don’t let my son plunge off the ‘disability cliff’ when I’m gone

USA Today reports on the urgency of developing lifelong supports for adults with I/DD, including the need for more intentional communities.

Permanent link to this article: http://www.familiesspeakingup.com/2018/04/17/dont-let-my-son-plunge-off-the-disability-cliff-when-im-gone/

Benjamin’s Hope: Helping adults with autism thrive

News out of Michigan – 13 ON YOUR SIDE’S Meredith TerHaar shows what makes Benjamin’s Hope so effective and why its funding might be at risk.

Permanent link to this article: http://www.familiesspeakingup.com/2018/04/16/benjamins-hope-helping-adults-with-autism-thrive/

65 Organizations Sign Letter to CMS Promoting Housing Choice

65 Organizations recently wrote CMS in response to alarming demands for an expanded process of heightened scrutiny submitted by the “HCBS Advocacy Coalition.”

Permanent link to this article: http://www.familiesspeakingup.com/2017/07/30/20-organizations-sign-letter-to-cms-promoting-housing-choice/

Ohio ICF Families Granted Intervention in Disability Rights Ohio Lawsuit

Ohio disability rights

Great news coming out of Ohio! We’d like to congratulate Caroline Lahrmann and Bill Choslovsky. Click here to read the Ohio judge’s opinion.

Permanent link to this article: http://www.familiesspeakingup.com/2017/07/30/ohio-icf-families-granted-intervention-in-disability-rights-ohio-lawsuit/

Adults with Disabilities Deserve the Right to Choose Where to Live

Amy Lutz nails it again with this compelling piece on housing choice in Spectrum News.

Permanent link to this article: http://www.familiesspeakingup.com/2017/06/15/adults-with-disabilities-deserve-the-right-to-choose-where-to-live/

Presume Beneficence – Psychology Today

Bravo to Amy Lutz who says that “parents are part of the autistic and I/DD communities, not the enemy.”

Permanent link to this article: http://www.familiesspeakingup.com/2017/06/15/presume-beneficence-psychology-today/

Report to the Ford Foundation: Homes For Life Planned Community in DE

Thank you to everyone who contributed to the Homes for Life report to the Ford Foundation that outlines plans for building an intentional community in Delaware.

Permanent link to this article: http://www.familiesspeakingup.com/2017/04/06/homes-for-life-planned-community-report-to-the-ford-foundation/

Governor Markell Writes Important Letter to CMS

Thank you to Governor Markell for emphasizing the importance of eliminating policy barriers to housing choice in your recent letter to CMS.

Permanent link to this article: http://www.familiesspeakingup.com/2016/12/02/governor-markell-writes-important-letter-to-cms/

Load more